Michigan PKU & Associated Disorders connects families and individuals living with PKU and related metabolic conditions to the community, resources, and support they need — right here in Michigan.
Michigan PKU & Associated Disorders was founded by a mother whose child was born with PKU. Like so many of us, she was thrown into this world with no roadmap.
Her mission was simple: bring people together. Create a place where families dealing with PKU and related metabolic disorders could find each other, share what they've learned, and stop feeling so alone.
Today, we're a growing community of parents, grandparents, aunts, uncles, and individuals with PKU across Michigan — sharing resources, swapping recipes, celebrating milestones, and showing up for each other.
Connecting Michigan PKU families
Clinics, grants, formula help
Low-protein ideas from families
Meetups, fundraisers, and more
Summer events are in the works — follow us on Instagram or join the Facebook group for announcements.
Our biggest event of the year — connect, share stories, and enjoy a day together with other Michigan PKU families.
Help us raise funds to support Michigan PKU families with food assistance, event costs, and community resources.
Can't make it in person? Join online for support, recipe swaps, and conversation with Michigan PKU families.
Whether you were just diagnosed or have been managing PKU for years, these are here to help.
The leading national organization for PKU education, advocacy, research, and family support.
Visit NPKUA →Food and formula assistance grants, patient support programs, and financial aid for rare metabolic conditions.
Visit NORD →Specialty food companies, formula options, and low-protein product guides for everyday living.
Explore Options →Just received a PKU diagnosis? Start here for the essentials, then reach out. You don't have to figure this out alone.
Connect With Us →Michigan has excellent metabolic and genetics clinics. Here's where to find them.
University of Michigan — Ann Arbor
Corewell Health — Grand Rapids
Detroit Medical Center — Detroit
Ask to be connected with the metabolic dietitian when you call.
Managing PKU means rethinking food every day. This space is for our community to share what's working.
Tried-and-true low-protein bread recipes shared by Michigan PKU families. Because everyone deserves good bread.
Low-protein pasta dishes the whole family can enjoy — from simple mac & cheese to creative new takes.
PKU shouldn't mean missing out. Cookies, cakes, and sweet treats adapted for low-protein diets.
Have a recipe to share? We'd love to add it.
Share a RecipeEvery dollar helps us run events, connect families, and provide resources to people managing PKU across Michigan.
Direct family support
Host a campaign
Help at events
Spread our mission
100% goes to supporting Michigan PKU families
Whether you're newly diagnosed, a longtime PKU family, or just want to learn more — we'd love to hear from you.
Our private group is where the daily conversations happen. Request to join and connect with Michigan PKU families.
Join Facebook GroupFollow us for event updates, community highlights, and PKU awareness content.
@pkumichiganQuestions? Want to get involved?
kristin@mipku.org