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Who are we:

Michigan PKU & Associated Disorders, Inc.

A 501(c)(3) nonprofit corporation

We are a nonprofit organization based in Michigan. Michigan PKU is a small organization, we support this web site, facilitate get-togethers through-out the year, and try to support PKU families in Michigan in any way we can.


Our Mission Statement:

Michigan PKU & Associated Disorders Inc. is a Michigan based non-profit – 501c(3) organization dedicated to providing support for individuals and families affected by PKU and associated metabolic disorders. We aim to promote social and educational activities for affected individuals and their families. We contribute our fundraising efforts to the Metabolic Clinic at Children’s Hospital in Detroit and support research on metabolic disorders throughout the world.


Contacting us:

Please contact us at:

Michigan PKU & Associated Disorders, Inc.

3062 E. Lois Ave.

Midland, MI 48640





What is This Web Site About: 

The goal in creating this website is to offer families working with PKU every opportunity to make it what you want it to be! We are happy to be the hosts of the site but it can't possibly run on just our thoughts and information. We truly want to make this YOUR website- Michigan's own. One that any parent of a newly diagnosed baby will find helpful when they are working through  the wealth of emotions surrounding a PKU diagnosis, as well as a new baby. A website that an adult with PKU will use in his/her struggle to return to or to stay on diet, a resource for a maternal PKU trying to have a  healthy baby. A website that will offer comfort to kids being pressured by their peers to change their diet or try other foods. A support center for all of us living in the PKU world.

We plan to update this site on a regular basis and welcome your input to keep it interesting and informative.


Why Do We Fundraise:

We are a small organization with limited fund-raising activity. Our biggest fundraiser is the annual PKU walk. We use the funds collected to support cooking classes and get-togethers throughout the year. We contribute monies to the PKU clinic at Children's Hospital. They use these funds to help families obtain low protein food or other PKU necessities. We also donate a portion to the National PKU Alliance for research.



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